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Why research endometriosis?

When you are healthy you have many dreams
- when you are ill you have just one...

This is reality for tens of millions of women around the world as they struggle daily with the symptoms associated with endometriosis: pain and infertility.

These symptoms can leave a woman unable to finish an education or maintain a career and have significant effect on her quality of life, her relationships and ability to have children, which also has a substantial socio-economic impact.

Yet, the origin of endometriosis is poorly understood, most treatments have side effects, and there is no cure.

Research to solve these puzzles is what the World Endometriosis Research Foundation is addressing!

What is endometriosis?

Endometriosis is a disease where tissue, similar to the lining of the uterus, is found in other areas of the body – mainly in the abdominal cavity, but it can also be found in the lung, and (rarely) in other areas of the body.

This tissue responds to a woman’s hormonal cycle. However, unlike blood in connection with the period, it remains within the body, where it bleeds and forms lesions, blood-filled cysts, and adhesions.

The symptoms of endometriosis include:

• Pain at menstruation, ovulation, intercourse, bowel movements, urination
• Sub-fertility
• Fatigue, bloating, nausea, heavy bleeding
• Possibly a susceptibility to develop other diseases, including certain cancers

Treatments include:

• Painkillers
• Birth control pills
• Hormonal suppression
• Surgical removal and, for some, hysterectomy.

For most women, side effects are associated with all of these treatments, and none of them cure the disease.

Why do we never hear of endometriosis?

Even in the most “liberal” of countries, female health issues, in particular those associated with menstruation, painful intercourse and infertility, are topics that are not readily discussed in society. They are still taboo in the 21st century.

Yet, all of these are associated with endometriosis, and women who are affected have to deal with these challenges on a daily basis. Unfortunately many mistakenly believe that “pain is part of being a woman” – even though pain is the body’s way of saying: something is not right.

This lack of awareness leads to an average diagnostic delay of up to eleven years in some health care settings.

Endometriosis may be progressive, and recent research has indicated that a delayed diagnosis can be associated with more severe disease.


This is why it is so important that we invest in research to find the cause and prevention

With sufficient funding the work of the Foundation will result in a major and beneficial influence on the diagnosis and management of endometriosis.

SUCCESS in these areas may herald a new era in meaning medical research for endometriosis.

SUCCESS in these areas may mean that women with endometriosis will be able to entertain more than one dream...

Be part of the global movement to solve endometriosis!

 

PLEASE HELP US NURTURE
ENDOMETRIOSIS RESEARCH

No amount is too small (or too large!)
to make a difference to tens of millions
of women with endometriosis across the globe.

 


 

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